Emily's EDS life

So, I went on a nice, normal family trip to Blackpool Pleasure Beach on Sunday, as I had booked the weekend off anyway it seemed like a good...

So, I haven't written for a while. If I'm honest, I am massively struggling with a lot of things at the moment. I'm getting be...

2017 has not shaped up to be a good year for me. So of course I had my two MPFL tendon reconstructions which while good for me, I had to spe...

So first of all a little background about the word cripple. It was originally used as a derogatory word to describe anyone who has a physic...

So, today marks a year since my rheumatologist appointment where I received the confirmation that I do in fact have Ehlers-Danlos Syndr...

So, it's been a while since I made my first post here. I just haven't been able to find the time... So apparently, the time is now, ...

So, hello and welcome to my blog. My name is Emily (obviously, it's in the title) and I have Ehlers- Danlos Syndrome. (Again, obvious......